Useful Links: these are provided for your information only and are drawn from our experience when searching
for help, information and support ourselves. We do not recommend or endorse any of the sites
these links take you to and they are not listed in any specific order. These links open in a new window.
If you have a problem with or complaint to make about the NHS, ring their Patient Advice Liason Service (PALS) - 0800 3287624 for Ipswich and East Suffolk (search for PALS for other areas).
The ME Association:
a charity offering information on:
ME/CFS and its symptoms
Management of the illness
Leaflets, books and other merchandise available from The ME Association
Details of independent local groups
Local Consultants and Clinics
Web site of Decode ME, a research project just getting under way to look for DNA differences in people with ME.
This is likely to be a very important research activity.
They will be asking for participants in 2021.
Fibromyalgia Action UK:
provides information and support to sufferers of FM and their families. In addition, the Association provides medical
information for professionals and operates a national helpline.
this is a very useful web site offering extensive information, advice and support for those with ME (Myalgic Encephalomyelitis).
Action for ME:
a charity dedicated to improving the lives of those with ME/CFS by offering information and telephone support.
National Fibromyalgia Association (NFA):
offers information about FM, its symptoms and treatment, ongoing research and has an online chat facility.
This is a very good 10 minute video giving basic information about what its like to live with ME. This would
be very good for friends and relatives of newly diagnosed sufferers to see. Don't forget to turn the sound on first.
Sleepydust Web Site:
A good source of information and support for people with ME and Fibromyalgia.
Action for ME web site offers information about Pacing and a downloadable booklet: for people with ME but probably applicable for FM too.
Pacing: MEaction's guide to pacing
A very useful guide to pacing, introduced for those with 'long Covid', but equally applicable to those with ME and/or Fibromyalgia.
site providing access to occupational therapy practitioners and many others.
Optimum Health Community:
free social networking site where you can get support from people all over the world who have ME.
Some diet advice for people with ME:
this suggests several foods that are particilarly beneficial to people with ME.
Freedom from ME:
this is part of the Optimum Health Clinic setup. The site offers a range of free information and advice on managing ME.